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2003: Summer Health

  and Safety, Part 1

 

 

MY MISSION:

To provide road warriors with travel-health information, resources, and inspiration to ease the stress and strain of life on the road and encourage healthier life choices

 

Copyright© 2002, 2003, 2004

Marlene R. Fedin

212-864-0826

 

 

 

Did you know?

Australia, Germany, Italy, and India ban cell-phone chatting while driving

 

The Wellness Wire* for March 18, 2004

*observations and commentary to inspire healthy choices

 

Ensuring the Safety of Special-Needs Travelers

One family's experience with a missing traveler provides a cautionary tale

of what can go wrong when you delegate responsibility for a loved one's care


By Marlene R. Fedin, The Wellness Concierge®

 

Copyright© 2004, Marlene R. Fedin; no reprint or reuse, on or offline,

without express permission of the author

 

RESOURCES

 

 

As the number of individuals diagnosed with Alzheimer's and dementia increases, and with a diagnosis confirmed at earlier ages, we're going to see more, and younger, people with this challenging condition traveling by air. And if they are able and willing to do so, why shouldn't they?

 

But who is responsible for their safety and well-being on the road?

 

 

The Associated Press story headline—Delta Accused of Alzheimer's Patient Loss—didn't get my full attention until I wrote a new HealthWire column blurb that read:

 

Alzheimer's Patient Temporarily Lost; Delta Accused of Failing to Provide Escort

The relatives of Antonio Ayala, a 79-year-old who had been diagnosed with Alzheimer's, reportedly asked Delta Air Lines to provide the unaccompanied flyer with an escort between flights in the Atlanta airport. But Ayala disappeared on March 15, apparently after walking out of the airport. Fortunately, he was found, almost a day later, at a bus station in downtown Atlanta. His situation was further complicated by a kidney ailment that required dialysis. (Ayala was switching planes on his way to receive dialysis in Texas when he wandered out of the airport.)

 

According to a Delta spokesperson's comment referred to in the AP story, "...the airline was not told of Ayala's medical condition and it cannot be held responsible for the whereabouts of every adult passenger." In a New York Daily News story, Delta spokeswoman Katie Connell denied that the airline was notified of Ayala's special needs ("a medical condition which required monitoring to prevent [Ayala] from wandering on his own.") although the airline said they were told he required a wheelchair.

 

The AP story also mentioned the sad outcome of a similar incident involving another airline. Seventy-year-old Margie Dabney, who also had Alzheimer's, was never found after she became separated from her husband during a stopover at the Dallas-Fort Worth Intl. airport in 2001. (After seeking $10 million, her husband settled privately with American Airlines.)

 

The news item may seem like an isolated incident, with little relevance for the average traveler. But it's more significant than a casual glance might indicate. Because, statistics aside, is there any one of us who doesn't know someone who has been diagnosed with Alzheimer's or dementia, whether a family member, friend, or acquaintance?

 

Like it or not, what happened to the Antonio Ayala could happen to someone we care about.

•••

Normally, it would have ended there. But I started thinking about the airlines' and the family's roles and responsibilities in this situation. I couldn't imagine the horror that the families must have felt when Mr. Ayala couldn't be found or when Mrs. Dabney disappeared. (And I was more than a bit incensed by Delta's reported response to the Ayala's situation, regardless of whether or not they'd agreed to help.)

 

But reporting a problem only calls attention to its existence. These two stories should do more. At the least, they should generate a lot more discussion about how travel vendors interact with special needs passengers. More importantly, they should motivate us to examine our own behavior and choices, to accept more personal responsibility, and to lobby for needed assistance. If their recounting doesn't generate such changes, what's the point of reporting—or ranting—about the problem?

 

So I added a personal commentary:

 

 

The Wellness Concierge Says...

The airlines regularly lose our luggage and our packed valuables. Their databases lose our reservations. They overbook and leave us stranded. They often cancel flights without reason or warning. Unaccompanied minors have been left without proper supervision and assistance. Pets have been mishandled and died in the airline's care. Is anyone truly surprised that they could lose track of an individual who could not fend for himself? Or that there may have been some miscommunication between someone requesting special assistance and the airline's promise to help and its ability to deliver it?

 

Although I question the Ayala family's judgment in letting their father fly without providing their own in-flight escort, I'm hard-pressed to think that they would fail to tell the airlines that a solo flyer with Alzheimer's needed assistance. Delta did say that the passenger had requested a wheelchair in Atlanta. (And, one assumes, at LaGuardia, as well, where Mr. Ayala boarded the first flight segment to Atlanta. How did he navigate security and get on the originating flight without special assistance from the airline?)

 

So if Delta was alerted—or even if they only suspected that he needed special help, without knowing why, and they allowed him to board, they should have provided the promised escort service for Mr. Ayala. (And if they were going to provide a wheelchair in Atlanta, wouldn't they have had to provide someone to push it and Mr. Ayala? In effect, providing an unofficial "escort" service to his next flight? Or did someone possibly put him in the wheelchair and leave him alone at the boarding area for the next flight? I'd be bombarding Delta with such questions, starting with: Did someone even show up at the arrivals gate in Atlanta with a wheelchair?)

 

I don't know the Ayala family's financial resources or their flying experience—or whether they did, in fact, alert Delta to Mr. Ayala's condition. (They insist that they did, once when purchasing the ticket and again, via a call to the carrier the evening before his flights.) I suspect they either didn't have the funds to pay for someone to accompany their father or didn't question the wisdom of entrusting a loved one to an airline (any airline's) total care. It's even possible that they didn't consider his traveling alone to be as risky as it turned out to be. Sometimes, alas, you can be too trusting.

 

But rather than judging this family or lambasting the airline for its lack of sensitivity and/or responsibility, we need to ask some "bigger" questions:

  • Should anyone with Alzheimer's, dementia, or memory problems ever be allowed to fly solo?

  • Is it even appropriate to ask the airlines to function as personal escorts for such special-needs flyers in the first place?

  • Are we doing all that we can as a society to make it easier for such special-needs passengers to travel?

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What Were They Thinking?

Personally, I wouldn't let anyone, of any age, who had a medical condition such as Alzheimer's, dementia, or memory problems, fly without being escorted by either a capable friend or family member. If that wasn't possible, I'd hire a nurse or trained caregiver. (There are services that can provide specially trained medical escorts or nurses for domestic and international flights. See Resources, below.). If I couldn't swing it financially, I'd look for an alternative method of travel.

 

It's a challenging situation. Individuals who are in the early stages of Alzheimer's may exhibit few or infrequent problems and may seem capable of traveling on their own. But given the landscape of travel today with its unexpected safety issues, unplanned stopovers, and lengthy delays (Conditions that challenge and stress out even the most able among us.), I'm not willing to take the risk for anyone in my care. And I doubt that you'd be either.

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The Traveler's Trilogy: Rights, Risks, and Responsibilities

To be fair, I'm sure that there are other well-intentioned folks who may have arranged for a loved one with special needs to fly solo without encountering such a serious problem. Many of them probably believe, without question, that any required assistance could (or should) be provided by airline or airport staffers. And I would also assume that there have been many compassionate flight attendants, ground employees, and even fellow passengers who have assisted (and looked out for) fellow flyers who may have exhibited memory or dementia problems. "Angels" who provide assistance without being asked.

 

But seriously, given the potential risks, how could anyone with their full faculties entrust the care of a loved one with such special needs to the airlines (or any travel vendor for that matter)? We've seen what they've done with our luggage and pets.

 

We don't want to deprive individuals with Alzheimer's of their right, and need, to travel. However, if we schedule travel for these individuals, we must do so responsibly. We can't just pass the buck to travel vendors.

 

I believe that those charged with the care of individuals with special needs must rethink what is actually required to ensure their safety. And then take responsibility for providing the special services that may be required on the ground and in the air. Relying on the airlines alone, even if they are willing and able to act as escorts (an admittedly big "if") is a risky choice. Why tempt the fates?

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Enlist Aid, But Don't Delegate Your Responsibilities

Alerting the airlines to the condition of travelers with physical challenges or special needs is mandatory, not optional. Even if you (or they) require no assistance, you should always tell the airlines about a passenger's medical condition (especially those without obvious symptoms) because it may be a consideration when assigning a seat or in providing other routine services.

 

When requested, airlines and/or airport personnel should provide special assistance in checking in and boarding special-needs passengers and in expediting a change of planes or negotiating a stopover. But asking airline and airport employees and other travel vendors to assume the role of personal escorts for these solo travelers is tantamount to asking them to assume primary responsibility for a special-needs flyer. And that is not their responsibility. Enlisting aid should not be the equivalent of handing over the care of a loved one.

 

Although airline flight crews may include trained nurses or nurse's aides, the flight crew's responsibilities do not include serving as personal nurses or escorts for individual passengers. And that is precisely what many folks with special needs require.

 

If someone's condition is such that they cannot reasonably be expected to look after themselves (as is generally the case with Alzheimer's or dementia) at various stages of travel, including a flight, the flyer (or the individual responsible for their care) should provide or hire their own qualified escort. Given the Dabney's case (and the stories of families who care for those with Alzheimer's), it's clear that even the company of one person may not be enough to guarantee someone's safety. How much more evidence do you need to know that no special-needs traveler should fly solo?

 

Before You Book a Flight:

What You Can Do to Reduce a Passenger's Risk and Increase Their Comfort

With an increase in the number of diagnosed cases of dementia and Alzheimer's, more and more of us will be faced with important decisions about how to ensure the safety of such special-needs travelers.

 

Here are some suggestions, considerations, and resources for smoothing the way for safe and comfortable air travel. Some are so obvious as to be insulting. But as we've learned, there are times when you can never be too direct.

 

► Ask for help. Even the most independent and competent caregivers require assistance as they travel with a special-needs passenger. Don't be afraid or embarrassed to speak up.

 

► Honestly evaluate a special-needs individual's ability to travel. Circumstances and conditions can change rapidly. Never schedule travel without having the individual professionally evaluated. You're not helping someone by placing them at risk for emotional or physical problems that may result from the pressures of travel.

 

► Don't expect—or ask—any travel vendor to assume primary or sole responsibility for special-needs travelers.

 

► Do not allow an individual with Alzheimer's (or dementia) to travel solo for any part of air travel.

 

Tell the airlines that a special-needs flyer will be traveling when you are booking the flight and when checking in. If you've requested special equipment such as a wheelchair, be sure to confirm (and reconfimr) its availability with the airport and the airline.

 

If you are working with a travel agent, make sure they alert the airlines for you and then reconfirm on your own in advance of the scheduled flight(s).

 

Don't ask another air passenger to assume escort responsibilities for all or any part of a flight, no matter how solicitous or helpful they may appear.

 

Never leave a special-needs traveler in the care of a stranger. If traveling with a person of the opposite sex who needs to use the restroom, enlist the help of official airport personnel. (Make sure you check their ID.)

 

Enroll the Alzheimer's patient in the Alzheimer's Association's nationwide Safe Return program. In the event that an individual is separated from you, the program provides an identification feature that can help locate the missing person and reunite them with their families. In addition, the organization can "fax local law enforcement agencies the missing person’s information and photograph" while local Alzheimer’s Association chapters provide "family support and assistance while police conduct the search and rescue."
 

► Get professional advice on how to help an Alzheimer's patient adjust to air travel. Routines are important and travel is anything but routine. Professional caregivers who have escorted flyers can offer specific advice and solutions to common concerns. The Alzheimer's Association offers detailed tips (routines, clothing, what to pack, etc.) for air travel in Airplane Travel Tips.

 

Members of an on- or offline support group may also have useful tips and strategies.

 

► Don't force someone to travel by plane who is either unwilling or unable to do so. Families and friends mean well but they may not truly understand how problematic air travel can be for an individual. It is one thing to drive (and that has its own unique challenges) an Alzheimer's patient somewhere in the company of several individuals. It's another thing to expect them to adjust to several hours in a cramped environment with no possible exit.

 

► Consult a medical specialist. The individual may want to travel, especially if they are eager to attend a special family gathering, but they may be jeopardizing their condition to do so. Make sure they are medically evaluated before scheduling a flight. Ask whether it's advisable and appropriate to prescribe any special medication or treatments for use before, during, or after the flight.

 

► Consider the Alzheimer's patient's schedule when booking flights. Review their daily schedules and routines and the times the normally awake, rest/nap, and retire. Don't schedule a flight that would seriously interrupt their routines (asking someone to fly late at night when they retire early, for example, or vice-versa).

 

► Aim for Simplicity: Aim for nonstop flights and those that have a high on-time rate. Avoid changing planes and any layovers, where possible.

 

► Allow extra time to check in, get needed aid, navigate security, and board.

TOP

 

► The  Alzheimer's Association (http://www.alz.org/); 800-272-3900

 

► Articles:

Ageless Design Advice & Advances Web site:

     Traveling With Alzheimer's;

     Guidelines for Traveling With a Person With Dementia;

     A Travel Success Story

 

The Alzheimer's Association:

     Airplane Travel Tips

     Vacation Travel Tips

 

► Paid Nurse/Medical Escorts

It's possible to hire a local nurse to serve as an escort. However, they may be unfamiliar with the inherent problems and challenges of air travel. Nurses who have special training and experience with air travel, such as those provided by air ambulance and medical escort firms, may be the best option.

 

Flying Nurses International (http://www.flyingnurse.com/): 877-521-1333; international, 808-521-1333; e-mail: Mail@FlyingNurse.com

 

U.S. Air Ambulance, Medical Escort Service: (http://www.usairambulance.com/s-l/04.htm) 800-633-5384

 

► Books

Anyone Can Travel: The Essential Guide for Seniors, People With Disabilities, Health Problems and All Travellers  Includes a special section on Alzheimer's

 

Copyright© 2004, Marlene R. Fedin; no reprint or reuse, on or offline,

without express permission of the author

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SOURCES

Information is compiled from medical and scientific journals and related professional publications, which have vetted the research data that they present. Additional information resources include medical and other professionals that I have interviewed.

 

UPDATED LINKS
Every effort is made to provide current, working links. However, given the nature of the Web and the frequency of change on individual sites, some links may not be available. If you can't find a noted resource or you find an error, please e-mail The Wellness Concierge
®. I'll correct errors and provide you with updated information, where available.
 

DISCLAIMER
The material you see here is provided for information purposes only and is not a substitute for consulting a healthcare professional.

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